Medical Care
Prise en charge du patient
All you need to do is send us your file, either by fax on 01 49 81 42 24 or by email: amylose.mondor@gmail.com or sos.amylosecoeur@aphp.fr
Your file must include:
A medical letter (from your cardiologist or doctor)
All previous radiological examinations:
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Heart ultrasounds
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Heart MRIs
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Bone scintigraphs, etc.
Biological examinations and anatomopathological results
Please provide your contact details so that we can get back to you. You can also contact Miss Isabelle Vallat on 01 49 81 22 53. She will be able to provide information concerning your appointment. Please note that this point of contact is for French-speakers only
I am not a resident: How do I obtain a referral to the Mondor Amyloidosis Network – Referral Centre for Amyloidosis?
The process is similar to that of French residents, except the hospital’s international department will send you a quote for the treatment option that the medical team advises. This quote may change according to subsequent care. The quote will detail the medical action required and other available services: interpreters, accommodation, catering in the case of hospitalisation, etc.
Procedures and services for each type of amyloidosis:
Our ward offers several procedures and services as part of amyloidosis patient care. Depending on the patient’s health and type of amyloidosis, they will be directly admitted to either cardiology, neurology, haematology or nephrology. There are several procedures in place for this: short consultation, extensive consultation (Cardiac Amyloidosis SOS), day admission, conventional hospitalisation, etc. The referral centre assigns a care coordinator to each patient. This coordinator is there for the duration of the patient’s hospitalisation and is available to contact at any time to discuss files and appointments. Mrs Carole Henrion is available on 01 49 81 28 16 and patients can also call from hospital rooms on 12816. Please note that this point of contact is for French-speakers only
Urgent extensive consultation:
Cardiac Amyloidosis SOS is an urgent extensive consultation. This SOS consultation allows us to admit patients quickly if they are suspected of having cardiac amyloidosis and to carry out the first examination (blood tests, salivary gland biopsies). This means we can establish what is causing the amyloidosis and prepare for examinations which might be necessary for the next period of hospitalisation, to make this process as convenient and short as possible. For all inquiries, our contact is Miss Isabelle Vallat on 01 49 81 22 53 or you can go to our website’s contact page. Please note that these points of contact are for French speakers only.
Day admission
In some cases, day admission is the best option to ensure that the necessary examinations for diagnosis can be carried out. Hospital admission takes place in the cardiac testing unit, where patients are seen by a cardiologist from the Referral Centre for Cardiac Amyloidosis.
Conventional hospitalisation
In other cases, an admission period of a few days might be the best option to ensure that the necessary examinations for diagnosis can be carried out. Hospital admission takes place in the cardiology ward, in the Heart Failure Unit for Amyloidosis.
Different wards
The doctor will select the appropriate ward for the patient (neurology, cardiology, renal or haematology) and the doctor leading care during hospitalisation will inform the network and contact the specialists that correspond to each patient’s symptoms. The patient will then see as many specialists as is necessary.
