Improving quality of life and autonomy

Gestion de la maladie

Managing this illness and its treatments has an impact on patient autonomy and daily needs. The team members at the Referral Centre for Cardiac Amyloidosis, carers and associates, specialists, paramedics, technicians, patient resource workers and carer resource workers aim to keep patients informed and are happy to help. The Amylo-PEP workshops (Amyloidosis Patient Education Program) are a great way for patients to get more involved in their own healthcare and the prevention of further complications related to amyloidosis. Please note that all workshops are in French.