Different protocols – Réseau Amylose – recherche

Different protocols

Quels sont les différents protocoles?

Non-interventional study protocols (medication is not administered):

AmyloAFFECT: Questionnaire concerning cardiac and extra-cardiac symptoms to develop a diagnostic tool

AmyloCOLLECT: Blood samples are kept for scientific research: different markers are administered to understand the physiopathological mechanisms involved in heart failure

NUTRICOEUR: Measures the impact of dietary education focusing on:

Preventing malnutrition
Reducing morbidity
Improving quality of life for patients with chronic heart failure

SAFE HOME: Aims to evaluate the safety and efficiency of home hospital visits in comparison to standard hospitalisation for decompensated heart failure.

AMYLO-CARTESIAN: Aims to determine the prevalence of transthyretin amyloidosis among elderly patients with aortic stenosis.

AMYLODEAFNESS: Aims to research the prevalence and characteristics of changes in auditory functioning in amyloidosis patients.

Interventional protocols (medication is administered):

Victoria: Aims to evaluate the effectiveness of VERICIGUAT (vasodilator) in chronic heart failure

Galactic: Aims to evaluate the effectiveness of L’OMECAMTIV MERCABIL in chronic heart failure

Amylogallantry: Aims to investigate the effects of EGCG and Doxycycline in patients with AL amyloidosis

Amylogalileo: Aims to investigate the effects of EGCG in patients with TTR amyloidosis.

Amyloshiatsu: Aims to evaluate the effects of shiatsu (a form of self-massage) on amyloidosis symptoms and its impact on patients’ quality of life

Obsamyl: Aims to estimate the number of patients affected by TTR amyloidosis in France and to evaluate the terms of use, tolerance and ‘effectiveness’ of Tafamidis.